Sunday, July 25, 2010

Long overdue update!!

Wow! Where has the time gone? Has it really been SEVEN months since I've last updated everyone? I guess I have had some good excuses!! Our biggest news - AIDAN IS OFFICIALLY A BIG BROTHER!! Baby Kade Alexander was born on April 14th, 2010! Aidan is absolutely in love with his brother and baby Kade has been so wonderful for him in return. We see Aidan moving more to watch his brother and smiling more often when he hears him or sees him near. Watching my two sons interact together just melts my heart!! I am one PROUD momma!

(In Kade's defense, he is a VERY happy baby, nothing like this picture of him crying! I promise to add a few more pictures soon of both boys!)

Another major change in our lives, we have found a new nurse. Her name is Miss Cathy. She has been such a blessing to our lives! She works hard with Aidan doing stretching, therapy and just being there to give hugs and kisses. We are so grateful to have her in our lives. I know Aidan just adores her!!

Aidan has grown since I've updated last (obviously!). He is now up to:

26lbs 8oz
35" long

Since Aidan got his trach in September he has become much more rigid, so recently we have started him on baclofen, a muscle relaxer. It has really helped loosed Aidan's tightness in his arms and legs and is allowing him to do things again that were physically impossible for him in the past - like putting his fingers to his mouth!! YAY AIDAN!!

Aidan had been relatively healthy this year, in fact his last hospital stay was in January of this year. However, on Wednesday, that all changed. Aidan was at home with his nurse while Kip and I were out for a couple hours and we got a text from her saying, "call me." We got home and realized he was retching, so I vented his g-tube (his way of throwing up) and it was pure blood. So off to the ER we went. After tests and bloodwork galore, we found out Aidan's stomach fundoplacation (or nissen) has come undone.

We were hoping to have surgery on Friday to fix it, but they got extremely swamped with traumas and were pushed back to Monday. Well as of right now (11:45pm on Sunday), we are not on the surgery schedule, but are being told not to worry. They always work in admitted patients. I say I'll believe it when I see it. Why were we pushed to Monday and not Saturday or Sunday you ask? Well the hospital feels that this is not an emergency surgery. And I agree, however, my little man hasn't had anything to eat since he came off his continuous overnight feed at 8:30 Wednesday morning! (The nissen keeps Aidan from throwing up and aspirating anything into his lungs!).

We would really appreciate your prayers as we await surgery for out little man! Aidan just can't seem to get a break, but ALWAYS handles everything that is thrown at him with a smile. He is such an inspiration to me!!